Thursday, November 24, 2016
Hello, I have copied and paste this post from the
following website. Please visit this website to learn
and help with a cure for this disease.
The mission of Alstrom Syndrome International (ASI) is:
To provide support, information, and coordination world
-wide to families and professionals in order to treat and
cure Alstrom Syndrome. Alstrom Syndrome is a rare
genetic disorder that affects children from birth. They
will become blind, hearing impaired, and suffer from
diabetes as well as enduring multiple organ failure,
including the heart, liver, lungs, and kidneys.
Alstrom Syndrome affects children of all nationalities and ethnicities.
There is no cure yet for Alstrom Syndrome, so physicians
and researchers are working to better understand the
complexities of how the "Alstrom gene" works, and
to develop better treatments for the multitude of problems
faced by children with this syndrome. The main program
areas of Alstrom Syndrome International are Research,
Education, and Family Support. Through its extensive
contact with families, physicians, and researchers,
ASI is building a solid core of knowledge and understanding
about Alstrom Syndrome.
One of the main goals of ASI is to promote, encourage,
and contribute to medical research for better treatments
and therapies, while remaining focused on an eventua
l cure for Alstrom Syndrome. International Conferences
make it possible for families, care givers, and professionals
to hear current information on Alstrom Syndrome presented
by experts on the Syndrome. They offer a unique setting for
mutual sharing and support. Conferences provide families
with individual consultation, workshops, and countless
opportunities to meet and socialize with others, including
professionals. Each conference incorporates a "research
clinic" where data is collected that can be shared with
professionals around the world. The ASI Scientific
Advisory Board ,a caring group of specialists, is 'on-call'
to offer help regarding health, development, and education
issues. Contacting the foundation office can access these
professionals. Educational materials focus on pertinent
issues and concerns related to Alstrom Syndrome.
The Family Packet includes information on such matters as the
complex clinical features of Alstrom Syndrome, what is
known about the ALMS1 gene, and provides a compilation
of medical information on Alstrom Syndrome.
Saturday, September 24, 2016
Congratulations to Garth Brooks, he has become the first
artist to win 7 Diamond awards. Garth Brooks was
previously tied with The Beatles who have six Diamond
The Diamond Award is given to artists who's albums have
sold ten million copies or more in the USA.
It is fitting that an artist who has been so kind to the album,
over the decades achieve this. While other artists seem
to care about singles that can be downloaded thru digital
media, or how many twitter followers they have, Garth
has taken care of the music.
It's a wonderful moment for us lovers of the album, to
have an artist achieve this.
It's wonderful for country music to have a country artist achieve this
A historic day for Garth Brooks and country music and music in general.
Garth's current tour which has his the Five Million in ticket sales, is on
track to become the biggest attended tour in History, has a busy few
months ahead, with a new studio album planned and other projects
With this award tonight, Garth's place in music history has been cemented
and deservedly so.
Sunday, June 12, 2016
Monday, May 30, 2016
The Space between us.
The US version due for release in August, will
have to be the most boring pathetic movie ever
I've only seen the trailer and I despise this movie
than the TV show "Super Fun Night".
There have been some BS movies in the past, but
seriously this should win the Oscar for the biggest
BS in History.
Steven Spielberg wouldn't even do a movie like
this, and hes been making BS for year.
So what do we have, a spunky 16 year old kid,
born on Mars, but now headed back to earth,
has fallen in love with a girl on the internet.
But his heart will only work on mars, so does this girl go
to back to mars with him.
I bet there's a lot of mean adults who don't understand
their love and will try and stop them.
I also bet once again, they're Disney teens, hand holding,
maybe a kiss on the lips. (No Tongue this is PG 13)
Movies like this, make me ill, they shouldn't be allowed to
exist. I bet the studio is pumping millions into adverts like
"The Feel Good Summer Movie of the year"
Please don't see this movie. Again it's more disgraceful
than "Super Fun Night" Hell it's worse than the last 12
Adam Sandler movies put together.
I hope the master copy gets burned and it never sees the
light of day.
The movie world should be so lucky though.
We are stuck with this BS.
Hope it Bombs.
Tuesday, May 17, 2016
Dear TVNZ sports Journalists.
I understand you will be sending a full team
to cover the Olympics, even though Sky has
the rights to show the events.
I hope Andrew Saville and Jack Tame,
cover the Olympics with the respect it
deserves, and more so, with accurate
reporting on what the world's media is
Here is what the public doesnt want to
see and hear.
Please don't lie and tell us that the Rugby
Sevens is the most popular sport in the
Please don't lie and say it's Rugby mania
in the Olympic village, and the Sevens player's
are the world's superstars.
Please don't lie and say, Usain Bolt, Kevin Durant,
Michael Phelps and the other
International sports stars are in awe
of the New Zealand sevens team.
Please don't lie and say, most the
world's media is focused on Rugby
and nothing else.
If your interviewing a Kiwi Cyclist,
a rower, a swimmer, our track and
field team, please ask them questions
about THEIR events, not if they
saw the Rugby Sevens.
If your interviewing an overseas
sports person, please ask them
about THEIR events, and not if
they like Rugby.
Do your research (Yes I'm talking to
you Saville) if your interviewing a
a sprinter, ask them questions where
the public might learn something they
Yes I know Sevens is going to be a
big part of the Olympics for KIWIS.
But the Olympics is also big for kiwis
who like the GLOBAL SPORTS,
and once every four years we get this
with the Olympics.
So my fingers and toes are crossed, but
because of past coverage, I'm not holding
out much hope.
Please prove me wrong.
Time will tell.
Thursday, May 12, 2016
(UPDATE: The group 350 Aotearoa will now
allow the elderly to enter the store, congrats to
them for that)
An Open letter to 350 Aotearoa.
We all agree that Climate change is real.
We all agree that Banks should support Business
that are kind to the environment.
We all believe 100% in the right to protest.
We all believe taking up a cause to help the
But what those handful of protestors did in
Dunedin was downright disgusting.
This wasn't standing your ground, this wasn't
making a point, it wasn't standing up for what
you believe in.
It was self righteous, Narcissistic, over inflated
sense of morality, it's the type of old time protest,
the type I expect from a middle age man who went
straight from high school, to teacher's college, to
teaching at a University, but has never travelled or
even own a passport.
I'm sure you will all be celebrating yourselves , but that
was repugnant. Several elderly people tried to walk into
the bank, you could see this one poor lady struggling,
but of course not one your protesters moved, you
continue to laugh and talk, like she wasn't even there.
Thankfully she didnt fall, but how do you think she felt.
Again, this wasnt standing up for yourself at the picketline.
This was purely a case of Narcissism.
But hey you guys know all about life huh.
Next time, I hope there is a rather large gentlemen
following the lady into the bank, I'm kinda guessing
you will move then.
Tuesday, May 10, 2016
Of all the stupid, racist ideas that people can have,
why is Blackface one of them?
Here is Danny Morrison an Ex New Zealand
cricketer, now commentator for the IPL,
thinking it's funny to dress up as a Hindu.
I'm kinda guessing he also put on a fake
Indian accent, thinking it was funny.
Did he think twice before doing this?
Did his bosses have a wee word with him
Did he think how freakin insulting and dumb it
Was he still stuck in some sort of time warp,
with the sense of humour of a 11 year old
His supporters will scream, "It's just PC gone
No it's not PC gone mad, it's disgraceful that a
person in the year 2016 would think this is
It's not the least bit clever or funny.
I hope the sports media in New Zealand,
speaks out against this.
But I'm not holding my breath.
Thursday, May 5, 2016
A funny funny episode, ten out of ten, once again
spoiled by the Disney theme of boys must date
out of their league and girls must date below their league.
Below is part of a post I did on April 7th.
What I'm talking about is what they deem to be success
for a young male and for a female in search of love.
Luke and Manny are nerds, they arent attractive, yet it
would appear they always get the hot girl, and the hot girl
is always good for them, the stories are written like, this
is what success should be for a young teen male.
Yet the two main young female actresses, well success for
them is to not to date the hot guy, but to infact date way way
below their league.
So why is Modern family doing this? Why are they falling
into the kinda creepy Disney trap of making boys being more
successful and making success about how good looking your
girlfriend is, but doing the exact opposite for the girls?
Can someone tell me? Or am I reading too much into it??
Are the male writers living out some sort of unfulfilled fantasy?
Just think about it, there is no way Modern Family will have Luke or
Manny dating a girl that is unattractive, but they have no problem
with Hayley or Alex dating a boy that is unattractive?
Is this some sort of weird sexism???
Personally I think its kinda ruin the show.
Again, Modern Family did the same theme tonight, the
hot girl asked out Manny and the hot girl said yes to
Luke. Yet Alex ended up with Ruben, the Nerd.
There is no way that this series will ever have Manny and
Luke date a girl that is overweight or unattractive and that
is disgusting and it's sexist and it's ruining the show for me.
Just for once, I would love to see Manny or Luke hook
up with a nice girl that isn't considered to be hot, but
this is Disney "an elite boys club" and it anit ever
going to happen.
What a horrible message to all teenagers.
Other than that the show was funny, but boy oh boy
it's going to wreck the legacy of the show.